Nearly four months ago I was diagnosed with narcolepsy. I had issues with my sleep my entire life. As a kid it would take hours to get to sleep; to the point where there were several times, I watched the sun rise out of my window because I simply couldn’t sleep. Before going to the sleep doctors I tried every single natural remedy I could think of; different herbal teas and supplements as well as melatonin and other such aids to no avail. I still could not sleep through the night, but my biggest qualm was that I would wake up every single day feeling more tired than when I laid down to go to sleep.
The problem is, I feel like the medications are making it worse. They have had me on methylphenidate, Adderall, temazepam, and one other stimulant so far in which I have not noticed any significant difference. Oh, except for the fact that now I am literally falling asleep anywhere and everywhere with no notice, when before it was only a problem that if I laid down my head anywhere I could fall asleep in minutes. And I’ll admit there were a few times I fell asleep at my desk in the very early mornings, but no matter how tired I had been in the past I never fell asleep during a movie. I feel much shame in admitting this; I fell asleep during Infinity Wars like six different times. I missed the ending and will have to go back this weekend to make up for this epic failure.
I just don’t understand how I wasn’t randomly falling asleep before the drugs, but all of a sudden now I am. They also have some pretty severe interactions with common medications; like I can’t even take Acetaminophen for a headache. And they are a hassle having to be taken at specific times a specific amount of times per day. I go in tomorrow to see if there are even any other medications they can put me on because I’ve already gone through all of the normal treatments.
When the doctor first told me about this diagnosis he told me that my brain showed signs of severe brain damage, and he asked if I had ever had any accidents in which I hit my head or had any type of damage. I told him I had never had so much as a concussion in my entire life. He then tells me the only other time he’s seen this is in PTSD victims that have returned from war and proceeds to ask me if I had experienced any trauma in my life to this point to where I literally laughed in his face. Where would you like me to start? But NEVER did I think any of it would result in actual brain damage.
Almost all of the research from general sources state the exact same useless things. I plan to dig deeper into this when I potentially have time, but the sources I plan to inspect are difficult to find and take time that I do not have. If anyone else has information or related experiences feel free to share; I would appreciate the input 🙂